30 Years of HIV

Where we are after 30 years

  • 5 June 1981: Center for Disease Control mentions a new virus in its weekly mortality report
  • 1982: The term Aids (acquired immunodeficiency syndrome) first used
  • 1984: Virus identified and named HIV
  • 1985: Rock Hudson dies of Aids, teenage haemophiliac Ryan White expelled from school because infected through treatment
  • 1987: First showing of Aids Memorial Quilt on National Mall in Washington DC
  • 1991: Jeremy Irons wears red ribbon and basketball’s Magic Johnson has the virus
  • 1993: Philadelphia film wins two Oscars
  • 2000: Infection rate in US among African Americans overtakes that in gay men
  • 2011: Global death toll 22m, infections 60m
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Kelly Clarkson Visits an Orphanage in South African

Celebrity Singer Kelly Clarkson boosted the spirits of a group of underprivileged children by visiting an orphanage during a charity trip to Cape Town, South Africa.

The singer met the residents of the House of Hope, an organization which looks after abused and forsaken children most of whom are infected with HIV.

The hit actress discussed her experience in a post on Facebook.com, writing, “I just got back from Africa and had so much fun! I got to hang with the House Of Hope kids and go on a mini safari with some friends and family. I love South Africa! I love those kids even more.

“If you don’t know, House of Hope is an orphanage in South Africa that I got involved with a little over a year ago. They house around 30 kids right now and have had a rough life but you wouldn’t know it because they are the greatest kids with the best hearts, laughs, and smiles!”

HIV stereotypes remain the biggest barrier in containing the spread of the disease and celebrity interaction with HIV patients play a big role in combating the stigma

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My HIV Problem and How I Got Cured

I have written a few of articles here in the past about some societal feelings towards our neighbors living with HIV or AIDS. My comments have centered on stereotypes and stigma associated with the disease and those who live with it. I did mention a friend of mine who contracted HIV and who, in the latter stages of his life, was completely abandoned by his own family for being sinful, perhaps.

If any of my articles appeared preachy to you, do not get mad at me yet, for I also had HIV problem. Mine was not the virus but I used to have the same troubled, prejudiced mindset about HIV and other sexually transmitted diseases, and I lived with the destructive and erosive ulcer of my thoughts for years.

As I mentioned in one of my previous articles, I heard about HIV for the first time 1986 and it was in a church, a common avenue in Ghana for the government to disseminate information to the public. The educators were a team of nurses and public health professionals from the Ministry of Health in Ghana sent by the government to tour communities and educate them about the new discovery, HIV. At that time, the information available to the instructors was scanty and only partially accurate.  There is no doubt we’ve learned quite a lot about HIV in the past 25 years. The health-care professionals came to sow the seed and it was left to the laymen of the church to continue the campaign in order to keep their flock saved from this evil. I was young, but looking back I am embarrassed by how much misinformation we were fed then and the years that followed.

Week after week and month after month, HIV was presented to us as a disease that affects sinners, and individuals who disobey the Word of God. It was nothing less than God’s retribution to deviant lifestyles and a warning for us to return to God. I imbibed this into my spirit and, for years, I also saw people living with HIV as simply paying for their trespasses. Then I began to ‘grow’ and got to know ordinary people like me who are living more decent lives than I do but who are unfortunate to be living with HIV. The result is that I lay off the childish thoughts (I Corinthians 13.11). There are many who contracted the virus through the ‘sinful’ way we know, and there are many more that got it through the many things we all do in life and take for granted. One of these people is a girl, Elizabeth from South Africa. To cut my story short, I paste here, again, a quote from Elizabeth own words:

“My mother passed away when I was five and my father when I was 10. I have been staying with my grandmother since then. I tested HIV positive in 2008 when I was 16 after being sick for a long time. I developed sores all over my body that wouldn’t heal even after taking medicine. My grandmother and I were always in and out of hospital. I missed a lot of school. At first doctors thought I had diabetes since the sores were not healing.

“After the diabetes test came back negative the doctor recommended an HIV test. At first my grandmother was against the idea but after some time she agreed. I was shocked when the result came back positive because I had never had sex. My grandmother cried too, she was very sad but the doctor explained that I may have been born HIV positive. I was very angry and blamed my parents for giving me this disease. I was immediately put on antiretroviral drugs [ARVs] and my sores healed… I feel very strong and healthy… all I want is to continue helping other people affected and infected by HIV/AIDS in my community.”

Will this change the way you see that friend, family member or neighbor with HIV? I don’t know but I hope it does. It surely changes mine.

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I Was Shocked When I Was Told I Have HIV

“I was shocked when the results came back positive”

That was a quote from an interview with Elizabeth Matambanadzo, 18, from Zimbabwe, who is living with HIV.  My hope is that, this will help all of us to become more accepting of people living with the HIV condition.

In most of our societies, it is commonly assumed that the person living with HIV or AIDS is just paying the price for his or her promiscuous lifestyle. The truth is there millions of people living with HIV for no fault of theirs. And there are millions more who have HIV for doing the same thing you and I do daily. Is it not time that we accept them as people and not just as ‘deserving patients ”?

UN Secretary-General Ban Ki Moon once said:

“Stigma remains the single most important barrier to public action. It is a main reason why too many people are afraid to see a doctor to determine whether they have the disease, or to seek treatment if so. It helps make AIDS the silent killer, because people fear the social disgrace of speaking about it, or taking easily available precautions. Stigma is a chief reason why the AIDS epidemic continues to devastate societies around the world.”

Let Elizabeth continue:

“My mother passed away when I was five and my father when I was 10. I have been staying with my grandmother since then. I tested HIV positive in 2008 when I was 16 after being sick for a long time. I developed sores all over my body that wouldn’t heal even after taking medicine. My grandmother and I were always in and out of hospital. I missed a lot of school. At first doctors thought I had diabetes since the sores were not healing.

“After the diabetes test came back negative the doctor recommended an HIV test. At first my grandmother was against the idea but after some time she agreed. I was shocked when the result came back positive because I had never had sex. My grandmother cried too, she was very sad but the doctor explained that I may have been born HIV positive. I was very angry and blamed my parents for giving me this disease. I was immediately put on antiretroviral drugs [ARVs] and my sores healed… I feel very strong and healthy… all I want is to continue helping other people affected and infected by HIV/AIDS in my community.”

It is as difficult to fight the stigma and stereotypes associated as it is to fight the virus. I plan to write on the evil of stigmatization and its social consequences soon. Please check back

Thanks for reading and please pass it on.

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Reducing trauma in HIV orphans

uganda orphans
When a child loses a parent to HIV/AIDS, grief counselling helps with the trauma of loss, but when the child is both poor and orphaned, the chances of a fulfilling life are significantly diminished.
Studies have found high levels of psychological distress among such orphans, and suggest interventions to improve their mental wellbeing. Here are some ways to minimize trauma among these children:
Keep them in the family
Most African orphans remain with their extended families, being cared for by either the remaining parent, grandparents or other relatives. Studies show that staying with family is best for children; institutional care should only be a temporary solution or last resort.
Keeping brothers and sisters together also enhances their emotional wellbeing; a 1998 Zambian study found increased emotional distress after sibling separation.
 
In addition, it appears that remaining with closer relatives rather than more distant ones is also better for orphans. A 2003 study in the district of Rakai, central Uganda, found that the more distant the relative, the lower the chances of child survival.
 
Meet their basic needs
Few African parents leave wills, and property grabbing is common when adults die; in a Ugandan survey, 21 percent of orphans aged 13-18 reported property grabbing. The phenomenon undermines the livelihood of families already weakened by the death of parents.
In addition, families who take in orphaned children are often poor themselves; additional mouths to feed often stretch limited resources to breaking point. These families may need economic support to a larger number of dependents.
 
A 2008 study suggested that programmes such as school-feeding schemes, sustainable food and gardening projects, employment initiatives and targeted assistance for grant applications could have positive mental health impacts on AIDS-orphaned children.
 
Provide psycho-social care
Dealing with the loss of a parent is tough enough, but watching a parent die, adjusting to a new family and dealing with stigma and a much worse economic position make counselling all the more important. A 2002 study in Tanzania's commercial capital, Dar es Salaam, found that orphans were significantly more likely than non-orphans to internalize their problems, jeopardizing their long-term mental health.
Grief counselling is important, notably for younger children who do not yet fully grasp the concept of death. Orphans may also need more life-skills training, particularly if they are not living in traditional family set-ups and have little chance of learning, for instance, gender roles and how to make the transition from childhood to adulthood. Peer support groups can be especially helpful in allowing orphans to share their feelings with people who may be going through similar situations.
 
Keep them in school
School drop-out rates tend to be higher among orphaned children; they often quit school to care for sick parents and never make it back into the education system. A 2004 Princeton University study of 10 sub-Saharan African countries found that orphans were at significant risk for lower school enrolment.
"When these orphans are not in school something happens, they refuse to think, but once they get back in school they regain focus on their lives," she told IRIN/PlusNews. "The difference between the child on the first day of farm school and one term later is amazing – they begin to look like any other child."
Free primary education has gone some way to improving overall school attendance, but other factors, such as living with a non-relative, continue to hamper orphans' education.
School-based peer support groups have also been shown to reduce psychological distress of orphaned younger children and teenagers.
 
Caring for the carers
Families taking in orphans face challenges too – a new household structure, additional expenses and the responsibility of caring for psychologically distressed children.
Custodial families may need counselling themselves to adequately respond to the emotional needs of orphans.
Surviving grandparents often step into the role of parent when their children die from AIDS-related causes. A Ugandan study  found that custodial grandparents experienced extreme economic deprivation, felt physically challenged with care-giving and emotionally stretched by concerns for the children under their care.
According to a 2009 South African study, families caring for orphans are not receiving the support they need; the authors found a lack of assistance from social support services and family. They recommended that health workers and home-based caregivers be trained to support orphans' caregivers.
 
Authors of the Ugandan study recommended that grandparents be offered "respite care, child care, parenting support, support groups and skills development and recreational opportunities for the grandchildren".
 
(A UN Study/IRIN)
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